Boys and Girls weekend

We had a great weekend. Bill took Logan on a all boys camping trip at Eastfork State Park. I know that they had fun because Logan came home looking like he took a dirt bath. There were a lot of kids there he played with and he said his favorite playmate was his cousin Tyler. Tyler is very good with younger kids so I'm sure he took very good care of my little guy. I got to have Jocelyn all weekend and we did what girls do. Watched a movie, ate food, and talked with our friends. Saturday morning I took her to a clinic sponsored by Bootsy Collins. A former Ben-gal cheerleader put on the clinic. It was a very nice program and it was fun watching her cheer with her friends. Logan started his daily steroid on Saturday the 8th. So far so good. The short term side effects make me nervous. Being on the steroid will increase his hunger which will cause weight gain. And if you know Logan he obsesses about food and when you don't give him what he wants to eat he gets very upset. Dr. Wong calls it excessive energy intake. It will be one of the many struggles we will encounter with him in order to keep him as healthy as we can. Another everyday obstacle I'm concerned about will be his mood swings another side effect of the steroid. Logan has never been one to be able to control or handle his emotions. I hope to be able to do my best to understand but also to discipline his behavior. The long term side effects of the steroid are manageable and he will be monitored for those. The purpose of the steroid is to keep him walking longer. I talked to a mother who's name I got from the MDA and she told me that her son is now 15 and was diagnosed at the age 2. He is taking the same steroid as Logan and he is just now getting into a wheelchair. That helped me feel a lot better about Logan taking a daily dose of steroid. Anything to keep him as healthy as we can. Please keep us in your prayers as we go through this journey to be patient and have the strength to deal with our daily struggles. Thanks for reading.