His new kicks

Logan started wearing his new night night shoes on Wednesday. He was so excited about his new boots. We are on day two and so far he has done very well. The first night wearing them he was a little uncomfortable sleeping. He got up three times during the night. During one of the times he was up he said that his feet were hurting and wanted to take his boots off. But he stuck it out and kept them on all night. Last night he did very well. There were no problems at all. He wore them all night and slept through the night. I'm so proud of that little guy. He is a fighter and I believe nothing will get him down.
Jocelyn has been very supportive of Logan. Last night she decided that she would also wear some night night shoes. She got a pair of her boots and wore them all night. She is such a sweet girl and loves her brother. I'm so proud of her for being there for her brother.
I love both of those turkey's and together we will get through all of this. Enjoy the pictures I would have to say they are pretty cool.

Medical update

I spoke to the neurologist about Logan's discolored urine and received answers to my questions. My question to the neurologist was "Is the brown urine a sign of to much activity or was it that he wasn't getting enough fluids?" I was informed that it was both. Brown urine is a sign of receiving to much activity. The recommendation is not to stop activities that may be tiring to him. He will just need periods of rest. It was also recommended that we push the fluids when the brown urine occurs. In the worst case scenario if the discolored urine would continued and he got his fluids then he would need to be flushed out by IV.
I've been struggling with what is best for Logan. A couple of situations have came up with him saying " I can't do it, I'm tired." Examples are getting up from the floor, going from a laying position to sitting up, and walking.  For a long time I thought Logan was just a lazy little guy. That he didn't want to do things on his own. I spoke to the neurologist about these situations. I asked if I should just help him or coach him to do it in a way that is easier for him. It really is my call. It will not damage him if he is coached. Over the years I have always coached him to walk when he said he was tried. Not because I knew that he needed to be coached but because I thought he was being lazy. I'm hoping that in the past me coaching Logan to walk when he said he was tired has kept him doing so well. I believe coaching him at this point is what he needs. If I notice that he is really struggling then at that point I will offer him assistance.
I love that little guy and only want what is best for him. I want him to do what he can on his own for as long as he can. I'm hoping Logan doing what he can on his own will give him a sense of independence. At this point we don't know how long he will be able to have that sense. With Gods grace I'm hopeful it will be for many years to come. Please continue to keep my little man in your prayers he will need all he can get.

Trick or Treat

This year for Halloween Bill and I took the kids to the Kentucky Horse Park for the Halloween camp out. It was a nice weekend enjoying time together and we had good company. Jocelyn was able to bring a friend and both of the grandma's made it down for a visit.
The weather was cold for most of the trip. We spent a lot of time by the campfire trying to stay warm.
Saturday was the day of activities. Our day started off with a magic show. I would say the magic show was probably Bill's favorite event. He has always been amused with magic. Then the kids were crafty and decorated pumpkins. After the pumpkin decorating we enjoyed a free lunch. Logan's favorite part of the day was taking rides in the bobcat cart so after lunch Bill, Jocelyn, Logan, and Gammer met up with a very friendly horse that they were able to feed. Then it was time for trick or treating. Jocelyn and her friend Kelsey dressed up as twin cheerleaders and Logan was batman. We ended our day celebrating Jocelyn's 8th birthday. Our baby girl is growing up. I am amazed by how quickly time goes. We sat by the fire reminiscing about the day she was born. She was so content and calm. Her birth was one of the happiest days of our lives. I could never explain in words the excitement and joy we felt to be blessed with a beautiful baby girl and to this day I'm very proud to have a daughter.
Now we're at the tough part. I have a call into Logan's neurologist. Logan told us that he had brown urine Saturday morning. I wasn't sure if it was true until Sunday morning when he showed Nanny. Sunday morning it was confirmed that he did indeed have a golden brown urine. Dr. Wong explained to us that brown urine means to much activity. Logan also was not getting the full amount of liquid that he requires in a day. My question to them will be was it the activity of camping that was to much  for him or was it that his system was not getting enough fluid to flush him out? The discolored urine was only in the morning. It did not continue throughout the day. I'm anxious to hear back from the doctor. This journey is a learning process and the more I know and understand it the easier things will be.
Now back to a positive thought. I was happy and felt blessed to be able to go camping spending time as a family.