Logan has his follow up appointment on April 3rd with Dr. Wong. Our patient itinerary starts at 8:00 AM. Logan will need to fast. He won't be allowed to have anything to eat or drink after midnight, except for water. His lab work will be the first procedure. So he will be able to eat something after his labs. This is good for Logan since food is very important to him. The next scheduled procedure is at 9:00 AM. He will be seeing radiology for x-rays. They will be checking his bone health since he has been on the steroid for 6 months. At 9:30 AM we go to Dr. Wong's clinic and see Dr. Irina Rybalsky. Logan will be checked by the doctor and have his timed tests done to see how he is progressing. While in clinic we will also meet with the nutritionist, neurology rehabilitation, genetic counselor, and PT. Our day is scheduled to be over at 2:15 PM. I'm anxious for the appointment to see how things are going. I don't know how to put into words the feeling I get when I got an itinerary in the mail and it's full of worry. Normally when you think of an itinerary its for something exciting and fun like a vacation or a fun event. Not to take your child to the doctor for a condition that is seriously going to effect his health. But on the positive side I feel extremely blessed that God has located us in Cincinnati near the best neuro muscular clinic in the country. People travel all over the states to see Dr. Wong and we are only 25 minutes away.
The appointments normally last around 5 - 6 hours. It makes for a really long day. We bring Logan a packed lunch and a backpack full of toys to play with. They also have a social worker to walk with Logan around the hospital if he gets really bored. At the last two appointments he has not needed to take a walk. Logan really has done well. I'm so proud of him. He has taken all his modifications really well.
On May 10th Logan will have an echo cardiogram. Then we will have our first appointment to see the cardiologist. I'm also anxious for this appointment. Logan has had 3 episodes were it has been noticed or he has complained of his heart beating rapidly. So I'm anxious about getting this checked out and to talk with the cardiologist about how Duchenne will effect his heart.
Please keep us in your prayers for the up comping appointments. I ask that God give us strength and positive reports.
Friday, March 30, 2012
MDA Muscle Walk - Why we walk
Last weekend was the MDA muscle walk. The best part of the walk to me was the speech that Bill gave for the "Why I walk" segment. He did a great job and I was very proud of him for standing up in front of at least 500 people telling them what it meant to our family to be walking for the MDA. His speech went like this:
Hi, my name is Bill. This is my wife Angela, our daughter Jocelyn, and our son Logan. Our team name is Logan's Hope. When we were asked to do the "Why I walk" segment, I would say that our team name would explain it best. We walk for Logan's hope. Logan was diagnosed with Duchenne Muscular Dystrophy in August. After getting his diagnosis it was clear to us that there was physically nothing we could do to cure his condition. The funds we have raised for the MDA will go toward the research of Duchenne Muscular Dystrophy. In that, it gives us hope that there will be a better quality of life for Logan and all those who share this condition. I'm proud to say we have raised about $7,500.00. Thank you to our team for your effort, love, and support for our son. It truly is amazing to see how family, friends, neighbors and people you have never met are willing to give their time and money to help. Thank you all again and God bless.
Our experience with MDA walk was extremely empowering. We all put on our boxing gloves and put up a huge fight. Duchenne you will not win and we have just kicked your ass!
Hi, my name is Bill. This is my wife Angela, our daughter Jocelyn, and our son Logan. Our team name is Logan's Hope. When we were asked to do the "Why I walk" segment, I would say that our team name would explain it best. We walk for Logan's hope. Logan was diagnosed with Duchenne Muscular Dystrophy in August. After getting his diagnosis it was clear to us that there was physically nothing we could do to cure his condition. The funds we have raised for the MDA will go toward the research of Duchenne Muscular Dystrophy. In that, it gives us hope that there will be a better quality of life for Logan and all those who share this condition. I'm proud to say we have raised about $7,500.00. Thank you to our team for your effort, love, and support for our son. It truly is amazing to see how family, friends, neighbors and people you have never met are willing to give their time and money to help. Thank you all again and God bless.
Our experience with MDA walk was extremely empowering. We all put on our boxing gloves and put up a huge fight. Duchenne you will not win and we have just kicked your ass!
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| Making a muscle |
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| Daddy and Logan making the walk |
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| Logan getting his walking shoes on |
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| Our team - Logan's Hope |
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| Notice Logan looking at everyone making a muscle for him |
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| Mommy and Logan making the walk |
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| I walk for Logan Behrend |
Thursday, March 22, 2012
MDA muscle walk
We are down to 2 days until the MDA muscle walk. I am so excited and proud of what we have accomplished. I feel extremely blessed and appreciative to my family and friends who have put their hearts into doing what they can to help save Logan. Bill, Jocelyn, Logan, and I are very blessed to have such supportive people in our lives that have gone out of their way to help find a cure for his condition. I'm proud to say that so far we have raised $6,500.00. Five months ago when we decided to walk I was really unsure of how many people we could get to sponsor us. I said, "Wouldn't that be cool if we could raise like $3,000.00?" When I was getting help from my contact at the MDA, she asked me what my goal would be. I said to her "Oh my, I don't know maybe $250.00." and I was really unsure that I would be able meet that goal. I am totally amazed with the overwhelming amount of support we have received. At this point we are the top fundraising team. My hope is that we stay in that position. I'm already proud of what we have accomplished, being the top fundraising team would intensify my feelings.
The weather for Saturday is going to be a high of 68 degrees which is perfect. There is a chance of scattered thunderstorms. I do pray that the rain holds off.
Again, thanks to all my friends and family for your love and support. Just know that you have touched my family in ways that could not be put into words.
With love,
The Behrend family
The weather for Saturday is going to be a high of 68 degrees which is perfect. There is a chance of scattered thunderstorms. I do pray that the rain holds off.
Again, thanks to all my friends and family for your love and support. Just know that you have touched my family in ways that could not be put into words.
With love,
The Behrend family
Wednesday, March 7, 2012
Bob Evan's Fundraiser event
On Feburary 17th we teamed up with Bob Evan's for a fundraising event. All of the proceeds went to the MDA in our fight against Duchenne Muscular Dystrophy and in the hopes of finding a cure.
What a turn out! It was extremely touching to see most of the resturaunt filled with people we knew or even people we didn't know standing in the lobby with the flyers that were passed out. The grand total was 82 flyers collected for a donation amount of $302.00.
What touched me the most was not only the funds we received for our fight but all the support we had. I feel extremely blessed and thankful to all my friends and family that came out to be there for our son. Logan is a special little boy and we are blessed to have great people in our life that love us. The support truly did mean alot and has touched my heart.
What a turn out! It was extremely touching to see most of the resturaunt filled with people we knew or even people we didn't know standing in the lobby with the flyers that were passed out. The grand total was 82 flyers collected for a donation amount of $302.00.
What touched me the most was not only the funds we received for our fight but all the support we had. I feel extremely blessed and thankful to all my friends and family that came out to be there for our son. Logan is a special little boy and we are blessed to have great people in our life that love us. The support truly did mean alot and has touched my heart.
Let's dance
Bill and I took the kids to the Valentine's Day dance hosted by the school. It was a blast. We all put on our best clothes and went out for the night of party and dance.
Jocelyn looked beautiful in her sparkly blue dress and Logan sure was a handsome little man in his dress shirt and tie.
Jocelyn was a typical eight year old girl hanging out with her friends. She was just too cool to be hanging out with Mom and Dad. Dancing with her friends was the agenda. She sure was the social little butterfly and had some moves that I couldn't even begin to explain. I loved watching her be herself and have a blast with her friends.
Logan was quite the dancing machine. That little guy sure can groove and certainly knows how to move his hips. I love the look on his face when he does his spin around move. His face lights up and he is very pleased with himself. I was very fortunate that Logan gave his Mommy a slow dance. I cherish the times like a slow dance at a school function because as I can already tell with Jocelyn they grow up so fast and one day Mommy and Daddy just aren't the center of their world.
Jocelyn looked beautiful in her sparkly blue dress and Logan sure was a handsome little man in his dress shirt and tie.
Jocelyn was a typical eight year old girl hanging out with her friends. She was just too cool to be hanging out with Mom and Dad. Dancing with her friends was the agenda. She sure was the social little butterfly and had some moves that I couldn't even begin to explain. I loved watching her be herself and have a blast with her friends.
Logan was quite the dancing machine. That little guy sure can groove and certainly knows how to move his hips. I love the look on his face when he does his spin around move. His face lights up and he is very pleased with himself. I was very fortunate that Logan gave his Mommy a slow dance. I cherish the times like a slow dance at a school function because as I can already tell with Jocelyn they grow up so fast and one day Mommy and Daddy just aren't the center of their world.
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