Follow-up appointments

Logan has his follow up appointment on April 3rd with Dr. Wong. Our patient itinerary starts at 8:00 AM. Logan will need to fast. He won't be allowed to have anything to eat or drink after midnight, except for water. His lab work will be the first procedure. So he will be able to eat something after his labs. This is good for Logan since food is very important to him. The next scheduled procedure is at 9:00 AM. He will be seeing radiology for x-rays. They will be checking his bone health since he has been on the steroid for 6 months. At 9:30 AM we go to Dr. Wong's clinic and see Dr. Irina Rybalsky. Logan will be checked by the doctor and have his timed tests done to see how he is progressing. While in clinic we will also meet with the nutritionist, neurology rehabilitation, genetic counselor, and PT. Our day is scheduled to be over at 2:15 PM. I'm anxious for the appointment to see how things are going. I don't know how to put into words the feeling I get when I got an itinerary in the mail and it's full of worry. Normally when you think of an itinerary its for something exciting and fun like a vacation or a fun event. Not to take your child to the doctor for a condition that is seriously going to effect his health. But on the positive side I feel extremely blessed that God has located us in Cincinnati near the best neuro muscular clinic in the country. People travel all over the states to see Dr. Wong and we are only 25 minutes away.

The appointments normally last around 5 - 6 hours. It makes for a really long day. We bring Logan a packed lunch and a backpack full of toys to play with. They also have a social worker to walk with Logan around the hospital if he gets really bored. At the last two appointments he has not needed to take a walk. Logan really has done well. I'm so proud of him. He has taken all his modifications really well.

On May 10th Logan will have an echo cardiogram. Then we will have our first appointment to see the cardiologist. I'm also anxious for this appointment. Logan has had 3 episodes were it has been noticed or he has complained of his heart beating rapidly. So I'm anxious about getting this checked out and to talk with the cardiologist about how Duchenne will effect his heart.

Please keep us in your prayers for the up comping appointments. I ask that God give us strength and positive reports.