Clarity

I spoke to Logan's pediatrician this morning asking for clarity of his recent echo cardiogram done on May 10th. She informed me that the report did read normal and it does not state that Logan is in the beginning stages of Dilated Cardiomyopathy. The concern was that his heart was not measuring normal and with the cardiac symptoms that he is having his cardiologist felt the need to investigate his heart further with a cardiac MRI in 6 months. I have not heard back from his cardiologist yet so I am assuming that if his holter test comes back with some abnormalities then Logan will have an MRI done sooner than 6 months.

I'm glad to have the clarity and it does seem at this point there is no need to be alarmed. I'm hoping that if there is something going on the holter test (the 24 hour monitoring device) will show something and we will proceed with the MRI. This will enable Logan to get the appropriate treatment he needs and hopefully prolong the effect of cardiomyopathy.

For Logan to have a cardiac MRI he would need to go under a general anesthetic. There is concern when anyone goes under anesthetic but for DMD boys there is a greater risk. There are only curtain types of medications he is allowed to receive or a number of serious problems could arise. Logan is only able to receive general anesthesia intravenously (through an IV) and not inhaled. Inhaled anesthetic agents have been linked with dangerous reactions in boys with Duchenne. So even having the MRI purposes a concern.

There truly is a lot I need to know with Logan's condition and I hope that I can just remember them all. Please keep Logan in your prayers as we continue through this journey.